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fibular hemimelia

Living with fibular hemimelia

Published on 08/11/18 at 04:14pm

Helena Baker, Vice President of Clinical Strategy at Medical Research Network and a trustee of the newly formed Rare Disease Nurse Network, was born with fibular hemimelia, a rare condition characterised by a congenital absence of the fibula bone, but went undiagnosed for almost half a century. She’s shares how her experience has shaped her life and her work to help others affected by rare disease

Can you tell us a bit about your condition and how you came to be diagnosed?

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